Welcome

This blog is my record of my journey with my son who had a rare, and eventually fatal metabolic illness. It is the story of the last year and a half of his life, his death, and after. I have shared this journey this in the hopes that is will not only help me come to terms with the realities, but also that someone along the way may find it helpful, as they face a similar journey.







This is my place to comment on events, blow off steam, encourage myself (and maybe you), share frustrations, show my love, grieve my losses, express my hopes, and if I am lucky, maybe figure out some of this crazy place we call life on earth.





The content might sometimes get a little heavy. As an understatement..







WARNING:







People who are grieving may write sad or difficult things and bring you down. This blog may not be for the faint of stomach or of heart. Read with caution and at your own risk.





If you are new to this blog, I suggest reading it from oldest to newest. It isn't necessary, as what I write is complete in itself. But this blog is sort of the result of the "journey" I'm going on, and I think it sort of "flows" better from oldest to newest.



I do hope that in the end you will find, in spite of all the difficult and heartbreaking things, things that are worth contemplating.





Welcome along!





Wednesday, December 7, 2011

Bad Dreams.

It might be time I did some intentional grieving... because this morning I woke up to a bad, bad dream.

Sorry to bore you with the details, but in my dream I had surrendered Joel to the care of Child and Family Services.  They had offered that if caring for Joel was "too much" for me, I could do this, no questions asked.  And so I had done so. (look, it was a dream.  In a dream we all do stuff that we never even would consider in real life)  Now it was a month later, a month since I had seen Joel.  "Oh my goodness!" I said.  "Maybe Joel has died and they didn't even tell me.  Maybe he is sick and I don't know.  Maybe I should see if they will let me visit him."

And then in my dream, grief and longing for my son burst full upon me (along with guilt and regret) and I woke myself up with my own tears.  And that deep, deep pain in my heart.  It was one of those crazy dreams that seems so real that even though I woke up and knew Joel had died, I still had to take a few more seconds to tell myself, "no, no, you never let him go, he DIDN'T die without you there."

It's hard to really explain the awfulness of a dream like this.  Some of you will understand.  Some of you also are good with imagination, you can empathize by thinking of yourself there.

I don't know.  Was it my feelings inside, letting me know that they need to come out, that if I don't deal with the grief, I will feel like I'm somehow in a sense "giving Joel away" because it is too hard to be sad...??  No, I don't hold that dreams have some special meaning, my Id speaking to my Ego, or anything spiritual or whatever.  But sometimes the FEELINGS that come out of them  can be telling.  Sometimes those feelings coming out in our sleep are a good barometer for us to pay attention to, maybe?

So, I am realizing from the deep feelings I woke up with, that I need to be careful to keep being "intentional" in grieving Joel especially in the holiday season.  It is easy to "get busy," to ignore sad things, to be distracted.  But I still miss my son so much.  I still long for him so greatly.  And I need to acknowledge that, because the love for him is always there.  And if I shove the pain aside because I am too busy to deal with it, then deep inside it feels like I'm "giving him up," in a sense, because it's too hard/inconvenient/painful to deal with the loss of him...  But all the love for him is still there inside me.

This might be hard for you who have not lost someone really close, particularly a child, to understand.  I know lots of people who think it is "healthy" to "let go" of the person, to allow yourself to be distracted and try to focus on other things.  Good for you, if you lose someone and find this works.  Personally I can not.  I just find that I have to feel the pain and sadness.  I can't deny the truth.  I miss my son.  I miss him so very much.  That's all I can say.