Welcome

This blog is my record of my journey with my son who had a rare, and eventually fatal metabolic illness. It is the story of the last year and a half of his life, his death, and after. I have shared this journey this in the hopes that is will not only help me come to terms with the realities, but also that someone along the way may find it helpful, as they face a similar journey.







This is my place to comment on events, blow off steam, encourage myself (and maybe you), share frustrations, show my love, grieve my losses, express my hopes, and if I am lucky, maybe figure out some of this crazy place we call life on earth.





The content might sometimes get a little heavy. As an understatement..







WARNING:







People who are grieving may write sad or difficult things and bring you down. This blog may not be for the faint of stomach or of heart. Read with caution and at your own risk.





If you are new to this blog, I suggest reading it from oldest to newest. It isn't necessary, as what I write is complete in itself. But this blog is sort of the result of the "journey" I'm going on, and I think it sort of "flows" better from oldest to newest.



I do hope that in the end you will find, in spite of all the difficult and heartbreaking things, things that are worth contemplating.





Welcome along!





Thursday, September 15, 2011

Wish I had better news...

Star has been moved from the "regular" room, back into ICU.  Her X-rays showed a serious infection is back in her lungs and her heart rate was very, very high.

I am feeling very, very sad about this.  Especially because it is very hard for Jun to get much time with Star, because the ICU has strict regulations on visitors.

I can tell Jun is very worried.  So if you pray, please pray for Star.  Pray that she can get well and go home.  Pray for Jun, and Star's father, and for grandma too, who often takes care of Star.

This is a pain I know all too well, and it is so hard when you are far away and can't even drop in with a casserole or a hug.  It feels helpless, not being able to do anything.  I know God has long arms, though.  So I am asking Him to give a hug to my friends, far away in China.
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