Welcome

This blog is my record of my journey with my son who had a rare, and eventually fatal metabolic illness. It is the story of the last year and a half of his life, his death, and after. I have shared this journey this in the hopes that is will not only help me come to terms with the realities, but also that someone along the way may find it helpful, as they face a similar journey.







This is my place to comment on events, blow off steam, encourage myself (and maybe you), share frustrations, show my love, grieve my losses, express my hopes, and if I am lucky, maybe figure out some of this crazy place we call life on earth.





The content might sometimes get a little heavy. As an understatement..







WARNING:







People who are grieving may write sad or difficult things and bring you down. This blog may not be for the faint of stomach or of heart. Read with caution and at your own risk.





If you are new to this blog, I suggest reading it from oldest to newest. It isn't necessary, as what I write is complete in itself. But this blog is sort of the result of the "journey" I'm going on, and I think it sort of "flows" better from oldest to newest.



I do hope that in the end you will find, in spite of all the difficult and heartbreaking things, things that are worth contemplating.





Welcome along!





Wednesday, September 7, 2011

Quick update on Star

I would like to let you know that we have found a FREE CPAP and Oximeter for Star!  FAME Canada has offered to donate them.  FAME is a Christian organization that works with third world countries, supplying medical equipment and meeting medical needs.  They have CPAP and Oximeter machines in their warehouse.  Yaaaay!

Now I need to work out the shipping.  I hope that doesn't cost too much!

Jun sent me some pictures of Star, and said I could put a some up here.  I thought you might like to see the people I have been talking about.  What a beautiful family!



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