Welcome

This blog is my record of my journey with my son who had a rare, and eventually fatal metabolic illness. It is the story of the last year and a half of his life, his death, and after. I have shared this journey this in the hopes that is will not only help me come to terms with the realities, but also that someone along the way may find it helpful, as they face a similar journey.







This is my place to comment on events, blow off steam, encourage myself (and maybe you), share frustrations, show my love, grieve my losses, express my hopes, and if I am lucky, maybe figure out some of this crazy place we call life on earth.





The content might sometimes get a little heavy. As an understatement..







WARNING:







People who are grieving may write sad or difficult things and bring you down. This blog may not be for the faint of stomach or of heart. Read with caution and at your own risk.





If you are new to this blog, I suggest reading it from oldest to newest. It isn't necessary, as what I write is complete in itself. But this blog is sort of the result of the "journey" I'm going on, and I think it sort of "flows" better from oldest to newest.



I do hope that in the end you will find, in spite of all the difficult and heartbreaking things, things that are worth contemplating.





Welcome along!





Tuesday, December 11, 2012

This post is just to point out I put a couple of 'new' pictures on the sidebar.  Lately Steve has been asking me why there are no picture of him up there.  So, I figured I better put a few up.  I never meant to exclude Daddy.  :)

I wish I had more pictures of Steve and Joel, but pickings are slim.  Not because Steve was not holding Joel or playing with him, because Steve did that every single day.  Just because Daddy was the camera guy and the camera guy never gets pictures of himself.  And if Daddy had Joel, Mommy beat a hasty exit to make the supper, or clean the kitchen, or maybe just take a nap.  I feel sad now that it never occurred to me to take more pictures of Steve with Joel.  I sure wish I had.

I tend to leave Steve out of this blog, because I sort of feel like he needs his privacy and I don't want to drag him and his feelings out onto my blog when he might not want them there.  So maybe he is a bit of a "gap" in the story at times.

But let me say this for the record.  He is one heck of a Daddy.  He loved Joel, he held him and talked to him and played with him and worried over him and loved him.  Not a week goes by that he doesn't tell me how much he misses holding Joel's little feet in his hand (he always used to rub them, because Joel liked it) or how Joel's hair smelled (because Joel smelled awesome all the time).

And because of Steve, I was able to stay home with our son and care for him myself.  I was also able to stay home with Caeden after Joel died, and spend time recovering myself and my son.  Steve is a great dad, and a great husband.  We love him very much.  I thank God for my husband.  And the rest of it is private, personal, and confidential.  :)

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