Welcome

This blog is my record of my journey with my son who had a rare, and eventually fatal metabolic illness. It is the story of the last year and a half of his life, his death, and after. I have shared this journey this in the hopes that is will not only help me come to terms with the realities, but also that someone along the way may find it helpful, as they face a similar journey.







This is my place to comment on events, blow off steam, encourage myself (and maybe you), share frustrations, show my love, grieve my losses, express my hopes, and if I am lucky, maybe figure out some of this crazy place we call life on earth.





The content might sometimes get a little heavy. As an understatement..







WARNING:







People who are grieving may write sad or difficult things and bring you down. This blog may not be for the faint of stomach or of heart. Read with caution and at your own risk.





If you are new to this blog, I suggest reading it from oldest to newest. It isn't necessary, as what I write is complete in itself. But this blog is sort of the result of the "journey" I'm going on, and I think it sort of "flows" better from oldest to newest.



I do hope that in the end you will find, in spite of all the difficult and heartbreaking things, things that are worth contemplating.





Welcome along!





Monday, February 7, 2011

Short Jacuzzi Update

Gotta warn you, not looking too good for a jacuzzi tub right now. Found out, not only are there some pipes to run, but also the concrete would have to be broken up and a drain moved a foot or two, as well as a duct that needs to be moved, as in cut up the wall and move it.... sniff...

No really, kind of a bummer. The AquaTech lady will let Children's Wish know about it all, with the estimates.

But I'm not going to get my hopes up. I could just see the dollars signs going up while she looked at what needed to be done. I don't think C.W. is going to be able to cover it. I think we are now talking SERIOUS dough. I mean, come on, break up concrete, move a drain and re pour that section???

It was worth a shot though. Joel would absolutely love it, and I would too...
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