This blog is my record of my journey with my son who had a rare, and eventually fatal metabolic illness. It is the story of the last year and a half of his life, his death, and after. I have shared this journey this in the hopes that is will not only help me come to terms with the realities, but also that someone along the way may find it helpful, as they face a similar journey.

This is my place to comment on events, blow off steam, encourage myself (and maybe you), share frustrations, show my love, grieve my losses, express my hopes, and if I am lucky, maybe figure out some of this crazy place we call life on earth.

The content might sometimes get a little heavy. As an understatement..


People who are grieving may write sad or difficult things and bring you down. This blog may not be for the faint of stomach or of heart. Read with caution and at your own risk.

If you are new to this blog, I suggest reading it from oldest to newest. It isn't necessary, as what I write is complete in itself. But this blog is sort of the result of the "journey" I'm going on, and I think it sort of "flows" better from oldest to newest.

I do hope that in the end you will find, in spite of all the difficult and heartbreaking things, things that are worth contemplating.

Welcome along!

Wednesday, February 8, 2012

New Blog.

No seriously, I didn't mean a new post, I meant a new blog.  As in, I started one.  :)

I've been thinking a lot later (a dangerous past-time, I know) and I wanted to have a place to write about it.  I mean thinking about things that were not specifically about Joel.  And I wanted to keep this blog about the things that this blog has always been about.

So this blog is staying here and I will still be posting though as you can see, it might be more infrequently.

And my new blog is started up so that I can post about the other stuff that has been on my mind and heart. 

Thus I am writing this blog to tell you about my new blog which I will put up a link to on my sidebar.  And tell you please do NOT feel in ANY way obligated to read my new blog.  I know that many (most?  all?) of you read this because you are interested or sharing a similar experience with grief and loss.  And this new blog is really not about that per Se.  You don't owe me anything, in fact, I feel more like I owe you for sharing Joel with me.

So feel free to check out my new blog, and then read it if you are interested or never go there again if you are not.  I mean that!  :)

In fact, I don't expect many readers, and I'm OK with that.  I'm just putting it out there.  Why am I putting it out there if I don't expect many readers?  I needed to?  I felt "led" to?  It was on my heart?  I don't know, but there it is.

I will be putting up a new post soon about the work I have started on Joel's memory quilt.  More later!


  1. Karen, I sympathize with the pain you are going through, but just be so thankful for everyday you have to spend with Joel. I lost my daughter in a terrible car accident and to this day, I still feel so alone. I know I should be grateful for all the times we had together, but the grief sometimes is to hard to manage so I am trying to help myself by using sites like http://onlineceucredit.com/edu/social-work-ceus-dl to get me through this grieving process. I definitely recommend taking a look and hope it helps you Karen.

  2. Can't wait to see Joel's memory quilt in progress, so post a few pictures for me. T