Welcome

This blog is my record of my journey with my son who had a rare, and eventually fatal metabolic illness. It is the story of the last year and a half of his life, his death, and after. I have shared this journey this in the hopes that is will not only help me come to terms with the realities, but also that someone along the way may find it helpful, as they face a similar journey.







This is my place to comment on events, blow off steam, encourage myself (and maybe you), share frustrations, show my love, grieve my losses, express my hopes, and if I am lucky, maybe figure out some of this crazy place we call life on earth.





The content might sometimes get a little heavy. As an understatement..







WARNING:







People who are grieving may write sad or difficult things and bring you down. This blog may not be for the faint of stomach or of heart. Read with caution and at your own risk.





If you are new to this blog, I suggest reading it from oldest to newest. It isn't necessary, as what I write is complete in itself. But this blog is sort of the result of the "journey" I'm going on, and I think it sort of "flows" better from oldest to newest.



I do hope that in the end you will find, in spite of all the difficult and heartbreaking things, things that are worth contemplating.





Welcome along!





Tuesday, March 12, 2013

This week at the endocrinologist...

.... everything was FINE!  :)


OK, I'll give you the details, don't beg! 

This week went much, much better on my new 7 mini-meal a day plan.  I actually managed to gain back a pound or two.  I am now totally against fois gras, because I really empathize with those poor ducks, but it was worth it to me to stay off insulin and have such good blood sugar numbers.

Yes, Kara, I am so with you about the eating 7 times a day diet.  I can't WAIT to just eat when I feel hungry and go with anything nutritious I feel like, instead of looking longingly at an APPLE, for goodness sake, and thinking... hmmmm... how can I put protein into this mini meal.  I mean, have you tried eating an apple with a tin of sardines?  Yeah, yeah, I eat it with cheese, but then there is a limit to how much cheese you really should eat in one day, considering how much fat is in cheese. 

Thankfully, since I only am eating more fat until the Baby arrives, I am sort of just not worrying too much, within reason.  I think my arteries can handle it for 6 weeks.  And yes, One Tired Momma, cottage cheese is my friend!  It is low in fat and has a good amount of protein to go with the carbs.  The only thing that really drives me nuts about cottage cheese is that it is HIGH IN SALT!  I have yet to find a brand that is not high in salt...  ah well.  Again, it is only for 6 weeks.    Who knew eating such a "healthy" diabetic diet could be so unhealthy!  ;)

And thank you for the suggestion about steak, Kara, because yes I LOVE steak, but I don't usually eat it very often because: 1. expensive, 2. not as good for you as chicken.  But this week I am for sure having me some steak!  I'm not sure I'll manage a potato with it, but we will see.  I'm finding the best carbs for me are very high fiber.  Which is why I am eating between a cup to a cup and a half of All Bran each day.  Half a cup is 2 servings of carbs, but it is also almost HALF of your daily fiber.

I thought I ate quite a bit of fiber before, but now it's just crazy.  Maybe all that fiber is washing the fat and salt right out of my system!  Anyhooooo.... I actually have not missed prune juice on this new extremely high fiber diet.

Sorry, I think I got way carried away in all the details there, more than you wanted.

Ahem.   When I saw the endocrinologist today, she was happy with my weight gain.  She was happy with my blood sugar readings too.  She felt that eating 7 times a day in small doses of carbs was the key.  I agree, but also know that never sitting down until an hour after I eat is also a part of it.

And because she was happy with things today, I DON'T have to see her until TWO weeks, instead of one!  Yahoooooo!  Not that she isn't nice, but all these appointments are killing me!

When I asked her about having Baby at the birth centre she smiled and said "Well, NO insulin!"  She also said that it was up to my midwife and I, she was OK with letting us figure out the details, but she felt things were going well.

In fact, I asked her today if I would need an ultrasound to check on Baby's weight and she said she didn't have anything to do with that, it was up to my midwife to decide if it was needed.  I was relieved by that.  From what I know, ultrasounds are notoriously bad at accurate estimates of baby weight anyway.  I actually would rather trust my midwife to 'feel' Baby and guesstimate her weight.  (though that isn't totally accurate either, obviously!)

When it comes to Baby's weight, I feel like I can't win.  So I have decided I can't lose either.  Most people I know sort of expect that a diabetes baby will be big.  If my baby is over 8 pounds, they are going to say it was diabetes.  But all my momma's babies were over 8 pounds and she never had diabetes.  Big babies run in the gene pool, people.  In fact, if this baby is any less than Caeden (9 pounds, 11oz) then I'm going to feel that diabetes was not a factor in Baby's weight.

As nice as it may be to have a small baby, like Joel was (to me, OK, I realize that 7 pounds is actually not small, just average, but after 9 pounds and change it seemed tiny) a small baby will be a bit worrying to me.  Because if Baby is less than 8 pounds, I'll have this niggling doubt as to whether Baby is small because she shares the same gene defect as Joel had.  There you have it.  I both want, and don't want a small baby. 

But the only part of that I control for the moment is my blood sugar.  And thank the good Lord, right now that is fine.  So when Baby comes, I'm just going to go with whatever weight she comes in.

I am counting down the days.  I can't wait to see her, and I cry about 5 times a day with both joy of anticipation and dread at the possible realization that might come with it.

Thanks, fellow GD sufferers, for the encouragement and understanding.  It is so nice you understand!  It gets a bit lonely out here in GD land.

1 comment:

  1. Do you like berries? I strongly suggest berries with cottage cheese. It saved me on more than one occasion.

    DEFINITELY eat the steak, the extra iron will help your hemoglobin be up and it will keep the weight on.

    Alisa (one tired mamma from your last post)

    Do you eat pasta? We found some awesoem brown rice pasta that had no affect on my sugars. So I could eat a cup cooked and be around 110.

    ReplyDelete