Welcome

This blog is my record of my journey with my son who had a rare, and eventually fatal metabolic illness. It is the story of the last year and a half of his life, his death, and after. I have shared this journey this in the hopes that is will not only help me come to terms with the realities, but also that someone along the way may find it helpful, as they face a similar journey.







This is my place to comment on events, blow off steam, encourage myself (and maybe you), share frustrations, show my love, grieve my losses, express my hopes, and if I am lucky, maybe figure out some of this crazy place we call life on earth.





The content might sometimes get a little heavy. As an understatement..







WARNING:







People who are grieving may write sad or difficult things and bring you down. This blog may not be for the faint of stomach or of heart. Read with caution and at your own risk.





If you are new to this blog, I suggest reading it from oldest to newest. It isn't necessary, as what I write is complete in itself. But this blog is sort of the result of the "journey" I'm going on, and I think it sort of "flows" better from oldest to newest.



I do hope that in the end you will find, in spite of all the difficult and heartbreaking things, things that are worth contemplating.





Welcome along!





Tuesday, May 31, 2011

For My Mother in Law

Here are a few videos and pics for you.  I wish I had more than I do.  I wish we had not lost most of ours from Joel's first year of life.  But of course, even if we had hundreds and hundreds, it could never be enough.  So one day I will run out of pictures and video, and I'll start having to recycle them.  Today is not that day, though.  So here you go:

If this video uploads properly, then you will see one of the last videos we took.  I don't know the exact date, but it was around the winter holiday season.  I know this, because the "ugly eye bumps" started sometime after the first week of January, and after that there were no more videos and only a few pictures...  Even though he is sleeping in this video, I love it.  That is how beautiful he looked when he was asleep.  Cute little curled up feet, and resting with such peace.

I will see if I can upload another one.  This one is of Joel when he was a year and a half.  Please excuse my scolding in the background right in the middle of it.  Anyone watching our videos must think I'm really cranky.  Sorry.  I had an almost three year old at that time.  What can I say?
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