Welcome

This blog is my record of my journey with my son who had a rare, and eventually fatal metabolic illness. It is the story of the last year and a half of his life, his death, and after. I have shared this journey this in the hopes that is will not only help me come to terms with the realities, but also that someone along the way may find it helpful, as they face a similar journey.







This is my place to comment on events, blow off steam, encourage myself (and maybe you), share frustrations, show my love, grieve my losses, express my hopes, and if I am lucky, maybe figure out some of this crazy place we call life on earth.





The content might sometimes get a little heavy. As an understatement..







WARNING:







People who are grieving may write sad or difficult things and bring you down. This blog may not be for the faint of stomach or of heart. Read with caution and at your own risk.





If you are new to this blog, I suggest reading it from oldest to newest. It isn't necessary, as what I write is complete in itself. But this blog is sort of the result of the "journey" I'm going on, and I think it sort of "flows" better from oldest to newest.



I do hope that in the end you will find, in spite of all the difficult and heartbreaking things, things that are worth contemplating.





Welcome along!





Thursday, March 24, 2011

P.S.

I just checked the link on this blog, and yes, it does indeed connect you to the right place. If you check it out, go to the "Home" page, there is a picture of Joel there, with the other children.

I'm really proud of the families who have put so much work into organizing this. They are precious people, all of whom are living with the same condition that we have. All of them are watching their children fight a terminal disease with no cure. They are brave and beautiful families, and I love them. It has been a blessing and a privilege to have their support on this journey.
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1 comment:

  1. kdactylMarch 24, 2011 at 9:18 PM

    Oh Karen....I have been gone from the internet for two weeks due to our recent move and was so anxious to log back on and get an update on Joel only to find he has already gone home to Jesus. I just want you to know that my heart is with you and your family right now and I cannot even imagine what you are going through. You have been the best mom to Joel and gave him the best life through your relentless commitment to him and your faith that God would get you and your family through. I was so happy to read that Joel's journey home was peaceful and in the arms of you and your husband.

    Although I have never met you or Joel, I have followed your blog for almost a year now and I want you to know that you and your little boy have left footprints on my heart.

    Much love during this difficult time.

    Karaleen

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