This blog is my record of my journey with my son who had a rare, and eventually fatal metabolic illness. It is the story of the last year and a half of his life, his death, and after. I have shared this journey this in the hopes that is will not only help me come to terms with the realities, but also that someone along the way may find it helpful, as they face a similar journey.

This is my place to comment on events, blow off steam, encourage myself (and maybe you), share frustrations, show my love, grieve my losses, express my hopes, and if I am lucky, maybe figure out some of this crazy place we call life on earth.

The content might sometimes get a little heavy. As an understatement..


People who are grieving may write sad or difficult things and bring you down. This blog may not be for the faint of stomach or of heart. Read with caution and at your own risk.

If you are new to this blog, I suggest reading it from oldest to newest. It isn't necessary, as what I write is complete in itself. But this blog is sort of the result of the "journey" I'm going on, and I think it sort of "flows" better from oldest to newest.

I do hope that in the end you will find, in spite of all the difficult and heartbreaking things, things that are worth contemplating.

Welcome along!

Thursday, March 31, 2011

Funeral Video


  1. this is just beautiful. What a touching testimony to a short but meaningful life.
    i will never forget this.

  2. Thanks for sharing this. It touched my heart and brought me to tears as it showed that Joel was truly loved. And yes, what a testimony. I especially loved the videos! I am so glad you guys got to go on that little family getaway with Joel and spend time in the jacuzzi tub. We will keep praying for you.

  3. Great video. Thanks for sharing it!

  4. Joel has touched many people in our church and community. It was a blessing to follow his short life with the blog and stories from his grand mother. This video is and will be a great treasure for you and your family in the days to come. In times when you feel alone you will feel the presence of your son watching over you and bringing you comfort. Thank you for sharing Joel with us you would not believe the people he has touched..Blessings to you all

  5. oh Karen..this was beautiful. Joes was a beautiful boy and the song you had playing is one of my all time favorites...I have sang it in church several times over the years and love it. Still sending you tons of prayers of peace.

  6. Love it! :'^) Although he will be missed, my Angel Graham will look out for his new little angel brother till we all see him again.

    'Angel' Graham's Momma

  7. Hey,im sam i also lost a baby 3m to zellweggars syndrome. i just wanted to say,well had to say just how beautiful he was. i haven't cried too much maybe a handful of times since we lost our lilly a year ago and your angel brought me to tears such a beauty. the love between a mother and child never dies and i feel it,it keeps us strong. love is with you.xxx