Welcome

This blog is my record of my journey with my son who had a rare, and eventually fatal metabolic illness. It is the story of the last year and a half of his life, his death, and after. I have shared this journey this in the hopes that is will not only help me come to terms with the realities, but also that someone along the way may find it helpful, as they face a similar journey.







This is my place to comment on events, blow off steam, encourage myself (and maybe you), share frustrations, show my love, grieve my losses, express my hopes, and if I am lucky, maybe figure out some of this crazy place we call life on earth.





The content might sometimes get a little heavy. As an understatement..







WARNING:







People who are grieving may write sad or difficult things and bring you down. This blog may not be for the faint of stomach or of heart. Read with caution and at your own risk.





If you are new to this blog, I suggest reading it from oldest to newest. It isn't necessary, as what I write is complete in itself. But this blog is sort of the result of the "journey" I'm going on, and I think it sort of "flows" better from oldest to newest.



I do hope that in the end you will find, in spite of all the difficult and heartbreaking things, things that are worth contemplating.





Welcome along!





Friday, March 25, 2011

Face Marks

I'm going to continue posting on this blog. I just find it helps me, to chronicle all the things I feel and think. But now, for awhile, a lot of it might consist of me saying all the things I miss about Joel. And I'm not sure you all want to read that every day.

So what I am going to do, is leave this blog public. But I'm not going to put it on my Facebook every single time I put some small note on it. There might be a lot of little notes and thoughts. Instead, I'm going to leave it with you. You can check in when you wish too, and wait awhile in between visits if that works best for you. And then, if I have something I think you'd all like to read or that is particularly important to me, I'll put a notice up on my blog. Okay?

Today, I'm going to say that our last two days have been tiring but peaceful. We have had phone calls and flowers and feel your support and it is so important and precious to us to know you care. Truly, it amazes me the way a community and a church come together in support at a time like this. At the same time, we have just been resting here and home, and slowly realizing what has happened, and slowly putting the details to the funeral. It has been surprisingly peaceful, even with the stress that grief causes your nervous system. I've had some experience with grief before this, and it can give you a surprising restless feeling. Despite this, I have felt peaceful.

And here is my thought for the day. Today, I could put on my "nice" clothes to go out in at the start of the day. Instead of saving them for the last minute, and keeping on my "grubbies." Because today there was no danger of little nose marks, or wet little mouth marks, or leaky MicKey buttons. And I felt so sad to miss those little marks of that little precious face, resting agianst my shoulder, or pressed against my heart. I miss those beautiful little marks. I loved to see those marks of love on my clothes every day.

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